In February 2020 Harry and I are climbing Kilimanjaro, the highest mountain on the African continent and at 5896m high, it’s not going to be easy.
We begin in the rainforest climbing towards the Shira Plateau - where we break to acclimatise. From here, we approach the ice-capped peak of Kibo where we follow the impressive Southern Flank, Barranco Wall and Barafu Route to the summit. All in all, it will take 7 days, and we can’t wait!
We are doing this climb to raise funds for a charity close to our hearts, an incredible not for profit called OurBrainBank. 4 years ago my Aunty who means the world to me was diagnosed with glioblastoma, one of the most aggressive forms of brain cancer there is. She was told it was one of the hardest cancers to treat, told there was no cure and told she had a terminal condition with just 5 months to live. However, 4 years on she is still here.
She’s a huge inspiration and instead of admitting defeat she’s grabbed life by the balls and has taken control of her disease and is the driving force behind OurBrainBank. Its mission is to move glioblastoma from terminal to treatable, powered by patients.
OurBrainBank is an app that enables people with GBM to manage their disease better and connect to fellow travellers, using the OurBrainBank app. Patient-reported data, including symptoms, mood, and activities, will be analysed by world-class researchers to spot insights, accelerate learning and massively speed up clinical trials.
All money raised will be used to help:
Roll out our free App to meet demand in the UK and other English-speaking markets. Patients are desperate. they need funding to secure the same regulatory, ethical approval they have in the US.
Engage more patients and caregivers through smart and savvy communications and marketing. They've already attracted thousands, and urgently need financial support so they can meet the demand from desperate families.
Analyse data collected and publish their findings to help medical, scientific, and technology leaders understand the patients’ perspective and incorporate that data in their research.
Fund their growing virtual patient advisory group meetings, where people share experiences, seek advice, support each other, and provide critical real-life experiences of different treatments, surgeries, and coping strategies.
Enable them to exhibit at leading venues worldwide, so others may see how our innovative approach is working.
We ask you kindly to donate and help us reach our goal!
Alice & Harry XXX