Sleep is such a misunderstood and often-overlooked pillar of health. Idiopathic Hypersomnia in particular, is so much more than excessive daytime sleepiness. No, sleepiness is NOT laziness. Brain fog truly doesn't mean we're just ditzy, literally slow or lack regard for the people we communicate with simply because we can't recall conversations or situations.
For those of you who know my story in a little more detail, you may also have come to learn that my inability to be punctual regardless of the event (work, appointments, social events, parties, my OWN birthday or daughter's birthday parties, whether at our own house or paying by the hour at a venue, it was all the same, I could never make it on time. 😩🤦🏻♀️🙃 #thesleepstruggleissoreal) and it was never because I just enjoy making my loved ones upset or because I don't value and respect everyone else's time. Unfortunately, it is one of the most frustrating and debilitating symptoms of my condition, and is still just as misunderstood by nearly everyone I know.
I suffer from an invisible, rare, neurological sleep disorder. It's emotionally and mentally exhausting in addition to physically draining as our methods of trial and error with 'off label' medications tend to only be effective for so long. Not to mention, to the world, we may appear to look like we're "normal" and "highly functional people," until we're not.
By participating in The Hypersomnia Foundation’s Sleep/Wake Cyclers Ride for Research on June 12, 2021 and encouraging you all to do so as well; by kindly joining my Team, Aisa’s REM RYDERS, I hope to bring awareness of the importance of sleep health, rest and recovery and most importantly, to help raise funds for IH Research and treatments, especially since there still isn't a US-FDA approved medication or treatment for those of us with IH.
Thanks in advance for all of your support! 💛