In August of 2019, our 11-year-old daughter was diagnosed with juvenile dermatomyositis (JDM). It's a rare autoimmune disease that can present with specific skin conditions like rashes and calcium deposits. What goes on under the skin is even more serious as the immune system targets healthy capillaries in the muscles. It can result in fatigue, weakness, and potentially chronic, life-altering muscular issues.
Approximately just 2 to 4 children in a million in the United States are diagnosed each year and because of this small number in relation to other diseases and conditions, research and funding support is limited. There is currently no cure, but remission is possible for many patients after years of aggressive treatments.
We are grateful that our daughter was diagnosed early. She's on a treatment plan of oral steroids, infusions of steroids, weekly injections of chemotherapy drugs, anti-nausea medications and monthly infusions of immunoglobulin. She also has to be extremely careful about sun exposure and the risk of infection. Even a common cold could cause her disease to flare, a serious setback in her care.
Finding out that your child has a serious disease is both terrifying and overwhelming. The encouragement and useful resources we've received from the charity Cure JM have been a great help to us and other families as they raise money to fund research and to find a cure. This fundraiser is a way to help them continue their great work.
Please consider helping our efforts to raise money for this worthy cause. Join us in aiming for a cure. and learn more about ways you can help at juliegolob.com/curejm.
Cure JM Foundation® is a 501(c)(3) nonprofit organization focused on finding a cure for Juvenile Dermatomyositis (JDM) and Juvenile Polymyositis (JPM), the rare and life-threatening autoimmune diseases collectively known as Juvenile Myositis (JM). Our mission is to find a cure and better treatments for Juvenile Myositis and improve the lives of families affected by JM.