My 4-year-old son Elliott Llewellyn was born with Jacobsen Syndrome and a congenital heart defect called Hypoplastic Left Heart Syndrome. During his four short years of life, Elliott has undergone an open chest surgery, open heart surgery and several heart cath procedures. Our world was turned upside down in November 2016 when we found out that due to decreased heart function, Elliott would need to immediately be listed for a heart transplant and admitted to St. Louis Children's Hospital. Since then, our son has suffered several strokes which have caused multi-organ damage and have made our road to recovery much more difficult. Alison and I now live inside the walls of the hospital while our son continues to fight on. Elliott is truly our hero.
Just a few weeks ago, we were awarded a grant through Mighty Oakes Heart Foundation that covered several months of our mortgage back home. This gift allows Alison and I to be able to remain at Elliott's bedside in Saint Louis and to not have to worry about losing our home while doing so. Being that we are 2.5 hours away from home, you can only imagine how quickly our bills pile up since we both can't work currenlty. I truly can't put into words how much this gift has helped our family. I encourage you to watch the video uploaded to this page to learn more.
In honor of my 32nd birthday on March 31st, I would like to ask our friends and family to help me support Mighty Oakes Heart Foundation - an organization that works to support families of children battling congenital heart defects financially, emotionally and in ways unique to their needs. We are so thankful for all the love and support that has been given to us and want nothing more to pass that on to another CHD family.
Adam, Alison and Elliott.