My good friend's son, Jackson, was born with EB. Until meeting him, I had no other introduction to what EB is and how it effects so many children & young adults around the world. Every year in NYC there is an amazing event dedicated to raising money for EB Research, but due to COVID the event has gone virtual.
Please join me in donating whatever you are comfortable with and help me reach my goal of $3000 to help my friends and all the other famiilies dealing with EB continue their research in hopes to find a cure for this disease.
I have provided some more context to what EB is, please see the below details and links to their website.
_ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _ _
EB Research Partnership is the largest nonprofit funding research aimed at treating and ultimately curing Epidermolysis Bullosa, a group of devastating and life-threatening skin disorders that affect children from birth.
EBRP works to treat and cure EB as quickly and efficiently as possible, fulfilling our mission through partnerships with non-profit and for-profit organizations, foundations, individual donors, and the EB and research communities.
Leading researchers say treatments and a cure for EB are within reach. Though we have made significant progress, we need much greater resources in our pursuit of a cure.
1) What is EB: https://www.ebresearch.org/what-is-eb.html
2) Life with EB: https://www.ebresearch.org/life-with-eb.html
3) There mission: https://www.ebresearch.org/our-mission.html