On July 15, 2016, Elodie was born with a rare genetic disorder called Epidermolysis Bullosa ("EB"). This disease means that Elodie is missing a critical protein that helps bind the layers of the skin together, making her skin extremely fragile. Her skin will break or blister frequently, with everyday contact. There are no cures or even treatments for this disease right now. The only option is to care for her is through extensive bandages that are changed twice daily. Despite all of this and the resulting pain and discomfort from her disease, Elodie remains a happy, well-adjusted toddler. She inspires us to fight every day to bring her a much needed treatment, and ultimately a cure.
Abeona Therapeutics invites you to take the plunge with us and go all-in on the fight to #healEB.
+ The Plunge will take place at Cleveland's Edgewater Park on Saturday March 2nd at 2:00 pm.
+ All donations will benefit the EB Research Partnership, the largest non-profit dedicated to funding research aimed at treating and ultimately curing EB.
+ If you cannot attend, consider taking the ‘virtual’ plunge, which allows you to jump into any body of water, including a pool. All virtual plunges should be filmed and posted to Instagram using the hashtags #PlungeForElodie and #HealEB.
Regardless, please consider donating. Every penny matters in this fight to #healEB.
Visit plungeforelodie.org for more information and watch this video to learn more about EB: https://tinyurl.com/y77ef82c