On October 20th, for my 65th Birthday this year, I am riding my TREK Mountain Bike 65 miles to raise $5,000 for Juvenile Myositis research in honor of my grandaughter Macy.
Macy is an inspiration to me with her joy, her passion, and her love and compassion for others. If she can fight the fight she is, I can certainly ride 40 miles further than I ever have!
Last year, Macy was diagnosed with Juvenile Myositis, a rare, degenerative childhood disease that causes a child's own immune system to attack healthy tissue and cells. It can cause pain, weakness, inability to walk, disfigurement, and organ failure.
Juvenile Myositis can affect virtually any system of the body, the heart, lungs, skin, muscles, and more. And there is no cure... YET.
But that's where you come in.
WILL YOU JOIN ME! I will match $65 to the first 20 donors who donate $65 or more to help us fund research to Cure JM!
Any amount will help, so please, don't worry if $65 is more than you can give at this time.
You can give these kids hope. Hope for better treatments. Hope for a normal childhood. Hope for a brighter future. Hope for a cure.
Cure JM has made extraordinary progress in Juvenile Myositis research and programs, but there’s so much left to do. Cure JM’s Strategic Research Plan calls for substantial new investments to identify and understand the genes that cause Juvenile Myositis; new support for drug discovery and funds to get those advanced treatments to our kids. We can accomplish these goals, but we need to take action.
Like most rare diseases, Juvenile Myositis research is funded almost entirely from grassroots efforts, like this fundraiser. Every single dollar makes a difference. One reason Cure JM is a top-rated charity is that since inception over 90% of revenues go directly to research and programs to support their work to help our kids reach their full potential.
By making a gift in honor of my ride you are giving our family and all JM families hope for better treatments and a cure for Macy and others with JM.