Running Boston Marathon to save Maxwell!
Aut inveniam viam aut faciam -
I shall either find a way or make one
SLC6A1 is a rare neurological disease that wreaks havoc on children’s neurological system causing a movement disorder, speech apraxia and a debilitating form of epilepsy. The disease can be treated via gene replacement therapy. Amber Freed fights to find a cure for her son Maxwell and all other children suffering from SLC6A1.
In 2020, I will run the Boston Marathon to support Amber's mission to find a cure for SLC6A1 . Amber's son Maxwell has this rare mutation and will need gene therapy. Currently, a cure for SLC6A1 does not exist. Like a marathon runner, Amber relentlessly keeps pushing forward and won't stop until a cure has been found. Please help Amber achieve her goal of making SLC6A1 history!! She has created SLC6A1 Connect to fund research to better understand this rare disease and develop a therapy. This is a marathon and we will finish it! We will win!
Thank you for donating and sharing!