I am tackling the NY marathon on November 3rd. I won't be like any other racer that crosses the finish line. I have a rare lung disease called Primary Ciliary Dyskinesia (PCD). This is a degenerative lung disease. I will be walking 26.2 miles since, with 34% lung capacity, I can no longer run. I will be carrying a 6 pound portable oxygen concentrator (POC) on my back. My husband will be assisting me by carrying an additional 4 pounds of backup batteries since one battery will only last about 3.5 hours. I estimate that it will take me between 9-10 hours to complete.