Crosby has been friends with Hank since they were babies, and he started skiing the 24 Hour race for him when he was just 4 years old. He has skied through rain, wind, sleet, and snow to help his buddy live a long and happy life. Please help Crosby raise money to find a cure for his friend. We appreciate all donations, kind thoughts, and prayers for Hank. Let's find a cure for this aweful disease!!!
Since being diagnosed Henry takes 43 doses of medicine per day to maintain his condition and hopefully stabilize this disease. He also takes a Growth Hormone shot 6 days a week. He has occupational therapy, physical therapy, and speech therapy weekly, blood draws every two months and is seen by a kidney specialist quarterly to monitor his kidney function. In March 2019 we will be having our 11th annual ski event at Schweitzer Mountain Resort. With your help, life free of Cystinosis is within reach. Cystinosis is an incurable disease that only affects approximately 500 people, mostly children in the US and 2,000 worldwide, based on these rates, Cystinosis research is primarily funded through private donations. Time is of the essence - Thank you for supporting our family's race to save Henry. To learn more about Henry and Cystinosis please visit www.24hoursforhank.org