2021 Rare Disease Day Virtual 5k for VWM: Covid Edition

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Event Details
2021 Rare Disease Day Virtual 5k for VWM: Covid Edition

Join us on Rare Disease Day, Sunday, February 28th, 2021, for a virtual 5K to support the VWM Families Foundation. Register to walk, run or bike, indoor or outdoor, from wherever you are on February 28th! 


Vanishing White Matter disease (VWM) is a very rare neurological condition that destroys myelin, the brain’s white matter. In doing so, it permanently affects transmission of brain signals to the rest of the body. VWM primarily affects children and is untreatable, incurable and terminal. 


All proceeds support the VWM Families Foundation and will go directly to fund critical VWM research and clinical trials that will hopefully find a cure for VWM, and to support families living with VWM with care needs not covered by insurance. 


For more information about the VWM Families Foundation see www.vwmff.org.

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When
Sunday February 28th
All day

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