This year I have the honor of running with Team Gluten Free in the 2021 TCS NYC Marathon.
Our family’s Celiac story started 9 years ago with my son, Isaac, as a 3-year old. He began to have severe intestinal issues, he wasn’t growing and his teeth had turned gray, since he wasn’t getting any nutrients. In general, he was an absolutely miserable child, which was demoralizing because he was previously so happy. After way too many trips to the local doctor, where we were consistently told not to worry about it, my wife practically begged the doctor to have a blood test. My son’s numbers literally came back off the charts. After getting an endoscopy, he was officially diagnosed with Celiac’s disease and we were able to move towards getting him better. He is now a healthy, happy, athletic child who is amazing at dealing with his disease.
Several years later, my wife, Amy, who by this point had been gluten free for years, began to have her own issues. Testing showed damage to her intestines, most likely from undiagnosed Celiac’s Disease.
While we have learned to manage the disease as a family, there is much work to be done with regard to outreach and advocacy, in addition to early diagnosis and ultimately a cure. Thank you for your donation and helping us reach those goals!
Team Gluten-Free runners from across the country will unite in New York to run the 26.2 miles with one common goal: to accelerate diagnosis, treatments, and a cure for the three million Americans affected by celiac disease.
The Celiac Disease Foundation is the nation’s leading disease advocacy organization for celiac disease and gluten sensitivity. Since its founding in 1990, the Celiac Disease Foundation continues to champion many battles: federal recognition of celiac disease and labeling standards for gluten-free foods, improved diagnostic tools, widespread patient and provider education, access to mainstream gluten-free products, and the need for better treatments and a cure.