On June 24th it was announced that the 2020 TCS New York City Marathon was canceled due to COVID19-related health and safety concerns. This is no surprise and a very smart decision, as looking toward the greater-good is of the utmost importance.
For me, the cancelation of NYC does not change my commitment to raise awareness of and funds for Celiac Disease. On November 1st I will still run 26.2 mi as part of Team Gluten-Free...my run will be local instead and will be just as meaningful.
I cannot say thank you enough for your consideration of support for me and for those with Celiac Disease. Together we can find a cure for this autoimmune disease that affects me and 3 million others! 💚
The story below ("It's all good...") was written before the COVID-19 pandemic hit close to home. When I wrote it, the world in which we lived was 'normal'. Since then, that 'normal' has ceased to exist. None of us know when we will fully be back to typical daily living and routines, but we all continue to hold hope that time will come soon.
While I am not optimistic that the TCS New York City Marathon will take place this year, I am still committed to two very important things: running 26.2 miles on November 1st even if that means doing so locally; and most importantly, continuing to work to raise awareness and funds to benefit the Celiac Disease Foundation. This, to me, is even more important now as experts continue to learn more about COVID-19 and, hopefully, how it impacts those with Celiac Disease. Additionally, as vaccines and medications are developed to combat this disease, I need to do all I can to be sure that the Celiac Disease Foundation is able to fund research to ensure those preventions and treatments are safe for me and others with Celiac Disease. None of us should have to choose between our disease and a COVID medication
And so, despite the uncertainty and stress around us today, it continues to be of the utmost importance to me to help advance the work being done to better understand Celiac Disease and to support the development of treatments for it. And without question, a cure needs to be found!
Thank you for considering supporting me in this effort. Your support and love mean the world!
It’s all good…
A mantra I have held for a very long time that fits everything in my life.
The most perfect day? It’s all good. Confronted with a challenge? It’s all good. Surrounded by love? It’s all good. Feeling down? It’s all good. These three words can and have made all this difference for me on so many occasions. These words have helped me find the good in the worst of things and appreciate the good in the best.
June 12, 2019…”Mrs. Salsbury, you do in fact have Celiac Disease.”
How could I possible say It’s all good? This was not good…how could I find the good in this?
At 52 years old I was diagnosed with a disease for which I had just one symptom, iron-deficiency anemia, and about which I knew absolutely nothing. After much research (thank you Celiac Disease Foundation - celiac.org - for having such amazing information available to help educate!), I began to learn what I needed to know to understand what I was living with and how to successfully live with it. I was slowly beginning to use my mantra again…. It’s all good.
As I educated myself, I also began to think in terms of what fit It’s all good in my diagnosis. I realized that for it to be all good I needed to find ways to support the research, advocacy, and educational work being done to ensure healthy lives for those with Celiac Disease – healthy lives which I hope one day will include a cure!
When I was diagnosed, running was the only thing of which I felt I had control and where I had peace. While I work to have control of my Celiac through my gluten-free diet, as a newly diagnosed Celiac, there still is a feeling of lost control as I adapt to this new lifestyle. But through running, everything is in my control…and while I run, I do not have to think about anything other than the road ahead. The road ahead for me now includes such an amazing chance to combined supporting the work being done for Celiac Disease with the running that gives me peace and control. The road I will be running to do this is that of the TCS New York City Marathon as part of Team Gluten-Free for the benefit of the Celiac Disease Foundation!
Thank you for supporting me in this effort to find the good in my diagnosis! I am hopeful that each step of the 26.2 miles I will run on November 1st (plus every step I will log as I train!) is a step closer to more people understanding what Celiac Disease is; a step closer for more people getting diagnosed so they can heal; a step closer to more funding for research so needed; and a step closer so that research provides what we all so desperately want – a cure!
It’s all good.
.We are thrilled to be a charity partner in the 2020 TCS NYC Marathon! Team Gluten-Free runners from across the country will unite in New York to run the 26.2 miles with one common goal: to accelerate diagnosis, treatments, and a cure for the three million Americans affected by celiac disease.
The Celiac Disease Foundation is the nation’s leading disease advocacy organization for celiac disease and gluten sensitivity. Since its founding in 1990, the Celiac Disease Foundation continues to champion many battles: federal recognition of celiac disease and labeling standards for gluten-free foods, improved diagnostic tools, widespread patient and provider education, access to mainstream gluten-free products, and the need for better treatments and a cure.