2021 Spina Bifida Programs & Events


Event Details
2021 Programs & Events

    Join us in raising vital funds for the Spina Bifida Association of Colorado through an annual sponsorship or sponsor a specific program/event. 

  

Monthly - Education Series. Currently virtual. 

Monthly - Playdates, Adult Coffee Chat/Happy Hour

January - Winter Party

March - Ski Camp

June - Wheelchair Camp

July -  Walk N' Roll is the largest gathering of the Spina Bifida Association of Colorado community, typically over 250 people, with families coming from all over Colorado as well as Wyoming, Nebraska, Arizona, and New Mexico.  The Walk N' Roll is designed to build the local Colorado community and raise financial support for people living with Spina Bifida.

August - Teen Weekend

September - Gala

October - PASCO Halloween Party

November - Adult Friendsgiving


Sponsorship Level:

Platinum $5000

Gold $2500

Silver $1000

Exhibitor/Special Event $350

**Please reach out to the Events Chair at events@spinabifidaco.org for more information on Sponsorship Benefits**

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When
Where
Colorado, USA
Colorado, USA

Story

Spina Bifida is the #1 birth defect in the world with no main cause, it can be hereditary however in most cases the cause is unknown.  Every year over 1600 babies are born with Spina Bifida.


The mission of the Spina Bifida Association of Colorado is to build a better and brighter future for all those affected by Spina Bifida.

Colorado Facts

Approximately 3.5 in every 10,000 births results in a Spina Bifida diagnosis.


There are approximately 166,000 people living with Spina Bifida in the United States. Approximately 1,689  of those people live in Colorado. (data collection period: 2010).

The cost of lifetime care for people with Spina Bifida in Colorado is $1,000,000 though it can often exceed $1,689,000,000.

We pursue our mission by educating the public about the latest research on prevention, ex. the intake of folic acid before and during pregnancy.  For those individuals and families already affected we bring them together through multiple activities to see they are not alone in there fight, that we are a community.  We have individuals in their 70's and younger living with Spina Bifida, we can learn from each other how to get through the different stages of life.  We learn how to prevent common medical issues, how to get through school with common learning conditions, how to pursue higher education, job, relationships, etc. 


Join us and support the Spina Bifida Association of Colorado to educate the world about Spina Bifida and to enhance the lives of people in our community by bringing them together.


Thank you,


Mark Deschamp

Adult with Spina Bifida & Past Board Chair of the Spina Bifida Association of Colorado

Posted by SPINA BIFIDA ASSOCIATION OF COLORADO