Spina Bifida is the #1 birth defect in the world with no main cause, it can be hereditary however in most cases the cause is unknown. Every year over 1600 babies are born with Spina Bifida.
The mission of the Spina Bifida Association of Colorado is to build a better and brighter future for all those affected by Spina Bifida.
Approximately 3.5 in every 10,000 births results in a Spina Bifida diagnosis.
There are approximately 166,000 people living with Spina Bifida in the United States. Approximately 1,689 of those people live in Colorado. (data collection period: 2010).
The cost of lifetime care for people with Spina Bifida in Colorado is $1,000,000 though it can often exceed $1,689,000,000.
We pursue our mission by educating the public about the latest research on prevention, ex. the intake of folic acid before and during pregnancy. For those individuals and families already affected we bring them together through multiple activities to see they are not alone in there fight, that we are a community. We have individuals in their 70's and younger living with Spina Bifida, we can learn from each other how to get through the different stages of life. We learn how to prevent common medical issues, how to get through school with common learning conditions, how to pursue higher education, job, relationships, etc.
Join us and support the Spina Bifida Association of Colorado to educate the world about Spina Bifida and to enhance the lives of people in our community by bringing them together.
Adult with Spina Bifida & Past Board Chair of the Spina Bifida Association of Colorado