Join our efforts to advance CDG and NGLY1 awareness, research and resources for families that will help to improve the lives of children and young adults who have been diagnosed with Congenital Disorders of Glycosylation (CDG) and Congenital Disorders of Deglycosylation (CDDG).
CDGs are a large group of ultra rare inherited diseases affecting glycosylation. Every part of the body requires glycosylation to work normally, which explains the many different health problems that affect people with CDG. CDG is in fact so rare, that there are only around 200 known cases diagnosed in the US, and only around 1,200 worldwide.
CDG CARE is a nonprofit organization founded by parents that provide information, guidance and support to families that have been affected by all types of CDG and NGLY1. We advocate for increasing CDG awareness, scientific research and encourage families to unite together to form our very hopeful and strong CDG/NGLY1 Community.
We are proud to share that through our past CDG Community fundraising efforts we have currently funded $150,000 in research projects, $15,000 in family travel scholarships and $10,000 to our fellow CDG Patient Associations to collaborate and support their initiatives.
With your donation, we can help fund new educational and research opportunities, advance treatments in medical and therapeutic care, and keep up the momentum of our mission to raise CDG awareness and strengthen the future for our Community.
Even though CDGs are rare, our hope is not.
For more information, please visit cdgcare.org.
*If you would like to leave a donation in memory or honor or a loved one, please enter your message in the Comment field of your donation.