In 2007, our youngest son, William, was diagnosed with mitochondrial disease - a rare but incurable disease. Over the next 8 years, he underwent numerous hospital admissions (over 10), multiple surgeries, and other complications. He passed away in March 2015 at the age of 8.
Mitochondrial disease effects the energy cells (mitochondria) of the body and can cause many other health issues. For William, he was non-ambulatory (wheelchair-bound), fed by a g-tube, prone to seizures, low muscle tone, and other issues. He was a sweet child and his legacy and impact on us lives on beyond his earthly time.
Please join me in supporting UMDF to fund research, create more advocacy and awareness, and support others affected by mitochondrial disease. I am running the 2019 Chicago Marathon sponsored by Bank of America to raise money for UMDF.