Ava and Aubree were born at 35 weeks and had a rough start. At 13 days old they became septic and hypothermic. They were rushed to Akron Children's Hospital where they spent the next month fighting for their lives. They had always been delayed in hitting milestones and at first we attributed that to their rough start. As time went on we knew in our hearts that there was something more going on so we prayed and prayed for an answer. In May 2020, we received the genetic results that the girls had a very rare genetic disorder called HADDS. HADDS stands for Hypotonia Ataxia and Delayed Development Syndrome and is classified as a neurodevelopmental disorder. Due to HADDS the girls have kidney disease, cleft palates, low muscle tone, poor cordination, and strabismus, as well as speech, gross motor, and fine motor delays. We have been so blessed to have been given an answer so that we can best help our girls, but we need your help now too! HADDS is an extremely rare disorder. In fact only around 250 individuals globally have been diagnosed thus far. We need your help to fund research so that these amazing doctors and scientists can find out more about HADDS. We walk for Ava and Aubree and we ask that you would walk with us, hand in hand, to support our beautiful girls and the HADDS Community.