10,000 STEPS for a CURE
Every day in November 2020, we pledge to walk 10,000 steps to demonstrate our commitment in continuing along the journey towards a CURE for Telomere Biology Disorders, including Dyskeratosis Congenita, by fundraising for Team Telomere - an International Telemere Biology Disorders Non-Profit Charity.
Dyskeratosis Congenita (DC) is a rare disease that causes premature aging, bone marrow failure, organ failure and predisposes patients to cancer. There is currently NO CURE and very limited treatment options for quailty of life. There are only two little boys in Queensland currently diagnosed with DC, and less than a couple hundred worldwide.
"Team Telomere's mission is to provide information and support services to families worldwide affected by Dyskeratosis Congenita and Telomere Biology Disorders, to encourage the medical community’s research in finding causes and effective treatments, and to facilitate improved diagnosis by educating medical providers." teamtelomere.org
Join our campaign for Team Telomere and help fund critical research, patient care services and professional education.
Email firstname.lastname@example.org for registration details and fundraising merchandise. We have hats and water bottles for purchase this year which profits go towards the fundraising totals.