NATIONAL FOUNDATION FOR ECTODERMAL DYSPL...

NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS
NATIONAL FOUNDATION FOR ECTODERMAL ...
GoFundMe Charity : Dec 05, 2010
Tax ID: 37-1112496
BASED: Fairview Heights, IL, United States

$3,030 Money Raised

Our Mission

Our mission is to empower and connect people touched by ectodermal dysplasias through education, support, and research.

Ectodermal dysplasias are rare genetic disorders affecting 3-7 out 10,000 babies born today.  These disorders alter the development and function of the hair, teeth, nails and sweat glands.  Other parts of the body might also be affected.  These individuals may experience secondary symptoms such as cleft lip and palate, skin erosion, missing fingers and toes, hearing and vision challenges, respiratory infections, and other issues.  Since these disorders are so rare, families feel confused or overwhelmed by the information about the disorders and how it affects your body.  They are often frustrated by the lack of information available for particular syndromes.  The National Foundation for Ectodermal Dysplasias (NFED) is the only advocacy organization in the US that helps these families by offering them the education, support and research that they need.  By supporting the NFED, you will allow us to:

 

- Provide extensive information to families and their care providers

 

- Sponsor educational conferences for families and healthcare professionals

 

- Increase NFED families’ access to affordable oral health care through our financial assistance

 

- Help fund innovative research to identify treatments and cures

 

Your life-affirming investment will provide comfort for our NFED families since they know they have a place to turn for reliable information, support and hope.

We’re thinking BIG as we look toward NFED’s future – tenaciously seeking treatments and cures, expanding our resources, and improving our digital accessibility. That is why your support counts now more than ever.  Thank you.

Tax ID: 37-1112496

NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS

Fundraisers

Bowling for Bites Image Bowling for Bites Amount Raised: $260
 

5% Raised of$5,000 Goal

Help the NFED Send a Kid to Camp! Image Help the NFED Send a Kid to … Amount Raised: $15,606
 

156% Raised of$10,000 Goal