Neurofibromatosis, also known as NF, is a genetic disorder that causes tumors to grow on nerve pathways anywhere in the body. It affects 1 in every 3,000 people throughout the world, and is more common than cystic fibrosis, Duchenne muscular dystrophy and Huntington’s disease combined. NF can be inherited or be the result of a spontaneous mutation.
Dan and Jennifer Gilbert have been passionate advocates in the fight to end NF since their oldest son, Nicolas, was born with NF1. They have been long-time supporters of NF research initiatives at the Children’s Tumor Foundation, Children’s National Health System and the University of Alabama Birmingham. In 2015, they established the Gilbert Family Foundation to further advance their NF research efforts.
In 2017, the Gilberts established NF Forward, a nonprofit 501c3 organization. It shares a vision with the Gilbert Family Foundation to eradicate NF by funding groundbreaking, cutting-edge NF research. NF Forward strives to raise awareness about NF among a wide range of individuals and invite their support of this innovative vision.