What's Your Normal?
August 08, 2017
BENEFITING: FAMILIAL HYPERCHOLESTEROLEMIA FOUNDATION
EVENT: Race for FH
EVENT DATE: Sep 01, 2017
I have joined a team of ladies who don't totally love running, but love the cause they're running for. It's time to buckle down and finally reach the 5k goal - and what better reason than to raise awareness for our shared genetic disorder, familial hypercholesterolemia.
That's such a mouthful, so we call it FH. FH is an inherited disorder that runs in my family. FH causes very high LDL ("bad") cholesterol from birth - 2, 3, 4 times higher than normal. A lifetime living with cholesterol this high can cause early heart disease. Early diagnosis and cholesterol lowering treatment can dramatically reduce the risk for heart disease in people with FH. It can be that easy.
While FH has had a profound impact on our family, at least we know what we have and what we can do about it. About 1 in every 250 people have FH, but 90% of them are undiagnosed. The FH Foundation is working to change that so that people born with FH benefit from early diagnosis and treatment to prevent heart attacks, stents and bypass surgeries, and sudden death from heart disease.
That's why we're all participating in the Race for FH. On September 24th in honor of FH Awareness Day, we will each run our very first 5k to raise funds for the FH Foundation!
I want to help fund research, spread awareness and advocate for people with FH - especially the people who don't know they have it. These are your friends, your neighbors, and could even be in your own family.
What can you do?
1. Be sure you know your own cholesterol numbers and your family history when it comes to heart disease.
2. Be sure you have your children's cholesterol checked. The American Academy of Pediatrics recommends ALL children have their cholesterol checked between ages 9-11. It's good to know their baseline.
3. Please make a donation to the FH Foundation. I believe in this work - that we can help people live longer, healthier lives with a simple blood test and available treatment. The FH Foundation is using innovative, data-driven, approaches to get out there and let people know that the heart disease that runs in their family doesn't have to define their fate, or their children's.