$11,608

 

84% Raised of$13,750 Goal

Malibu Angioma Alliance Walk

October 21, 2018

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4th Annual Malibu Angioma Alliance Walk Photo

The Story

EVENT DATE: Oct 21, 2018

DEADLINE TO GIVE: Sep 29, 2019

FUNDRAISER SET UP DEADLINE: Oct 21, 2018

REGISTRATION IS FREE!

 

RAISE/DONATE $35 MINIMUM AND RECEIVE A T-SHIRT!

 

DOWNLOAD A FLYER HERE!

 

Thank you for registering for the Malibu Angioma Alliance Walk on Sunday, October 21 at Zuma Beach.  We look forward to seeing you! 

 

Directions

Zuma Beach

30050 Pacific Coast Hwy., Malibu

Please look for our tent and banner at the end of the Zuma Beach parking lot (the northern most point of the lot).  You can either go into the main entrance of Zuma Beach and drive north through the parking lot and park at the most northern end, or you can park along the PCH.  If you prefer to park along the PCH, pass the main entrance of Zuma Beach and travel north.  You can park close to the most northern point of the parking lot.  If you pass Trancas Dr. you have gone too far. 

 

Schedule

9:00 Registration opens

9:45 Pre-event ceremony

10:00 Walk

 

Don’t Forget

Please bring folding chairs and beach blankets!

 

We will have lots of family friendly entertainment including a raffle, kids obstacle course, food, drinks & more!  Thank you for your support of the mission of Angioma Alliance and those affected by cavernous angioma!  We look forward to seeing you!

 

On Sunday, October 21 at Zuma Beach our 3rd Annual Angioma Alliance Walk will take place to benefit the non-profit organization Angioma Alliance, the only patient and research organization supporting those affected by cerebral cavernous malformations (CCM).

 

We invite you to take part in this community-driven, family-friendly event. Highlights include food and refreshments, raffle, auction, entertainment, and many family-friendly activities. Angioma Alliance supports people affected with CCM, who develop abnormal blood vessel lesions in the brain that can hemorrhage and cause strokes and seizures in both children and adults. People with hereditary forms of the illness can develop many cavernous angiomas in a lifetime. Currently, brain surgery is the only treatment.

 

Angioma Alliance is working with researchers to develop medications that will prevent hemorrhage and prevent development of more lesions. Funds from our walk will be used to support Angioma Alliance’s DNA and Tissue bank, a patient registry, an international scientific meeting, and the development of clinical centers of excellence. We are driving research toward a cure!

 

Sponsorship opportunities are listed on the following page. Angioma Alliance is a 501(c)3 non-profit organization. All donations, including gift-in-kind donations, are tax deductible to the extent allowed by law. Our federal EIN is 02-0600697.

 

Collectively, our efforts result in a nationwide community bound together by cavernous angioma, but we don’t let that define us, it only empowers us! For more information about cavernous angioma and Angioma Alliance go to www.angioma.org.

Team Organizer's Photo

Team Eli for a Cure

Amount Raised:

$6,813

Team Organizer's Photo

Kristen Lewis

Amount Raised:

$3,805

Team Organizer's Photo

Yrigollen Family ❤️

Amount Raised:

$650

Team Organizer's Photo

Team Kristen Fowler

Amount Raised:

$290

Team Organizer's Photo

Sabrina Enomoto

Amount Raised:

$50

Team Organizer's Photo

Eli Kogan

Amount Raised:

$0

Team Organizer's Photo

Elizabeth Ludwick

Amount Raised:

$0

Team Organizer's Photo

Jaylah's team

Amount Raised:

$0

Team Organizer's Photo

Shannon Hancock

Amount Raised:

$0

Team Organizer's Photo

Team Matthew

Amount Raised:

$0