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Maria Kefalas' Fundraiser:

Making miracles possible for kids with leukodystrophy

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BENEFITING: Calliope Joy Foundation

ORGANIZER: Suzanne

Maria Kefalas

THE STORY:

Suzanne Crane wrote -

Calliope Joy Foundation wrote -

Imagine there is a miraculous gene therapy that could save your child from a degenerative neurological disease. What would you do if this treatment was not available in the US? That is the dilemma facing families diagnosed with leukodystrophy. Promising new treatments proven to save children's lives exist, but doctors in the US don't have access to these breakthroughs. It's too late to save our daughter Cal, but we want to help doctors bring pioneering treatments for leukodystrophies to the US.

This $500,000 grant will go to doctors to kickstart research in the United States.

Thank you.

Pat Carr and Maria Kefalas, co-founders The Calliope Joy Foundation, parents to Callie Carr, diagnosed with late-infantile onset metachromatic leukodystrophy in 2012

 

DONATE

To This Fundraiser

$6,820

MONEY RAISED
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  • Anonymous

    $2,500

  • Chipty+Franz Family

    $1,000

  • Bob and Rachel Chastanet

    $250

  • Devon Cordova

    $100

  • Pat & Katrina McGovern

     

  • Sue Hyatt

    $50

  • Paul P Andrews

    $100

  • Matt Ryan

    $25

  • Rachel and Yves

    $250

  • The Gavin Family

    $500

  • Connie Flanagan

    $100

  • Susan Liebell

    $200

  • Hermann and Mary

    $100

  • Anonymous

    $1,000

  • Bob Wyborn

    $20

  • Amber Salzman and Steve Barsh

    $500

  • Pat Mason

    $25

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Fundraise for this Campaign

The Team: $40,827 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Calliope Joy Foundation

Amount Raised

$28,552

 

29% Raised of$100,000 Goal

Fundraiser Title

Maria Kefalas

Amount Raised

$6,820

Fundraiser Title

Lisa Iorillo and Jim Sellar

Amount Raised

$2,415

Fundraiser Title

Susan Pizzica

Amount Raised

$2,100

Fundraiser Title

Suzanne Crane

Amount Raised

$375

 

0% Raised of$100,000 Goal

Fundraiser Title

Amy Price

Amount Raised

$240

Fundraiser Title

Michael Fisher

Amount Raised

$100

Fundraiser Title

Ingrid Saavedra

Amount Raised

$100

Donor Comments

Pat Mason

Pat Mason

DONATION: $25

With thanks for the Loie's Disease books and a small tribute to my grandaughter Zoey 2 years ago

Amber Salzman and Steve Barsh

Amber Salzman and Steve Barsh

DONATION: $500

Thanks for all of your wonderful and effective efforts! 2 years ago

Bob Wyborn

Bob Wyborn

DONATION: $20

3 years ago

Anonymous

ANONYMOUS

DONATION: $1,000

Maria and Pat: Thank you for all that you do. Best wishes for 2018 3 years ago

Hermann and Mary

Hermann and Mary

DONATION: $100

3 years ago

Susan Liebell

Susan Liebell

DONATION: $200

3 years ago

Connie Flanagan

Connie Flanagan

DONATION: $100

Maria and Pat, we are thinking of you and your family. 3 years ago

The Gavin Family

The Gavin Family

DONATION: $500

With love 3 years ago

Rachel and Yves

Rachel and Yves

DONATION: $250

in honor of Cal 3 years ago

Matt Ryan

Matt Ryan

DONATION: $25

For Cal! 3 years ago