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Lisa Iorillo and Jim Sellar's Fundraiser:

Making miracles possible for kids with leukodystrophy

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BENEFITING: Calliope Joy Foundation

ORGANIZER: Suzanne

Lisa Iorillo and Jim Sellar

THE STORY:

Suzanne Crane wrote -

Calliope Joy Foundation wrote -

Imagine there is a miraculous gene therapy that could save your child from a degenerative neurological disease. What would you do if this treatment was not available in the US? That is the dilemma facing families diagnosed with leukodystrophy. Promising new treatments proven to save children's lives exist, but doctors in the US don't have access to these breakthroughs. It's too late to save our daughter Cal, but we want to help doctors bring pioneering treatments for leukodystrophies to the US.

This $500,000 grant will go to doctors to kickstart research in the United States.

Thank you.

Pat Carr and Maria Kefalas, co-founders The Calliope Joy Foundation, parents to Callie Carr, diagnosed with late-infantile onset metachromatic leukodystrophy in 2012

 

DONATE

To This Fundraiser

$2,415

MONEY RAISED
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  • Mo

    $100

  • John K

    $100

  • Louise Hornecker

    $50

  • Scott and Debbie

    $100

  • Allan

    $50

  • Steve Brechin and Nancy Cantor

    $100

  • Debby

    $100

  • Alicia Raia-Hawrylak

    $50

  • Norah MacKendrick

     

  • Laurie Krivo

    $100

  • Julie Phillips

    $100

  • Karen Cerulo

    $100

  • Pat & Ernie Kodada

    $25

  • Lexi Gervis

    $50

  • Lindsay Stevens

     

  • Arlene Stein

    $100

  • A friend

    $100

  • Anonymous

    $100

  • We LOVE you LaLa!!!

    $100

  • theresa kirby

    $50

  • Alex D.

    $50

  • Paul McLean

    $100

  • Milena A.. Wilson

    $25

  • Eleanor LaPointe

    $50

  • Tom Rudel

    $100

  • Kristin Hassett

    $100

  • Joanna Kempner

    $50

  • Pat Roos and Lee Clarke

    $100

  • The Cherrys

    $50

  • The Reilly Family

    $50

  • Donna Tomaselli

    $50

  • Susan & Jerry Pizzillo

    $50

  • Sharon Bzostek

    $50

  • Hana Shepherd

    $50

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Fundraise for this Campaign

The Team: $40,827 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Calliope Joy Foundation

Amount Raised

$28,552

 

29% Raised of$100,000 Goal

Fundraiser Title

Maria Kefalas

Amount Raised

$6,820

Fundraiser Title

Lisa Iorillo and Jim Sellar

Amount Raised

$2,415

Fundraiser Title

Susan Pizzica

Amount Raised

$2,100

Fundraiser Title

Suzanne Crane

Amount Raised

$375

 

0% Raised of$100,000 Goal

Fundraiser Title

Amy Price

Amount Raised

$240

Fundraiser Title

Michael Fisher

Amount Raised

$100

Fundraiser Title

Ingrid Saavedra

Amount Raised

$100

Donor Comments

Hana Shepherd

Hana Shepherd

DONATION: $50

3 years ago

Sharon Bzostek

Sharon Bzostek

DONATION: $50

3 years ago

Susan & Jerry Pizzillo

Susan & Jerry Pizzillo

DONATION: $50

3 years ago

Donna Tomaselli

Donna Tomaselli

DONATION: $50

3 years ago

The Reilly Family

The Reilly Family

DONATION: $50

Lisa your amazing! Good luck! 3 years ago

The Cherrys

The Cherrys

DONATION: $50

3 years ago

Pat Roos and Lee Clarke

Pat Roos and Lee Clarke

DONATION: $100

3 years ago

Joanna Kempner

Joanna Kempner

DONATION: $50

3 years ago

Kristin Hassett

Kristin Hassett

DONATION: $100

3 years ago

Tom Rudel

Tom Rudel

DONATION: $100

3 years ago