BENEFITING: GETTY OWL FOUNDATION
I am looking to raise funds that will ultimately help cure my son who has SMA type 1. I will be teaming up with The Getty Owl foundation which is a non profit organization. So all your donations will be tax deferred. Any amount will help me reach my goal. I also need some cheering on as I stumble through the mud and crawl under barb wire.
There is currently no treatment or cure for SMA, the #1 genetic killer of young children, but THERE IS HOPE! The National Institute of health has declared SMA the disease closest to treatment of more than 600 neurological disorders.
1 in 6,000 births are to an SMA child
1 in 40 are carriers of SMA
A simple blood test can indicate if you are a carrier
All money raised will be benefiting the gene therapy program through Dr. Kaspar at Nationwide Children's Hospital in Columbus, Ohio. GETTY OWL FOUNDATION believes in the program. We believe there is hope!