BENEFITING: Pulmonary Hypertension Association Inc
EVENT: PH in the Park 2017
EVENT DATE: Aug 27, 2017
THIS YEAR, 2017, holds some significance for me. This year I celebrated 10 years since my official diagnosis and can now be considered a "long-term survivor." February 7th, 2007 will be forever etched in my mind. I won’t ever forget it, probably couldn’t even if I tried. Though, in all honesty, after everything that I have learned and all the amazing people that I have met, I wouldn’t want to.
After months of repeated tests, my family and I heard the words "Pulmonary Hypertension" for the first time. The diagnosis was “official,” but even after hearing the words: “weak heart, compromised lungs, dangerous to bear children, progressive disease”…I wasn’t sad, angry or afraid…I was relieved…relieved to FINALLY have a name to put to the consistent pain, the dry coughing, the shortness of breath, the racing heart.
Don’t get me wrong, I’m not happy about the diagnosis and it is not easy. I struggle with pain, fatigue, shortness of breath and other symptoms daily. Just like any other chronic disease, I have my good days and my bad, BUT…I ALSO HAVE mobility, I have hope, and I am mentally stronger than I have ever been. I am surrounded by people that I love, as well as, absolutely brilliant professionals. I have become an advocate of my own health, I lead multiple support groups for people with PH…I’ve realized that I am much more than a diagnosis.
Thank you for helping bring awareness and research to this horrible illness. Pulmonary hypertension is a rare, under-diagnosed, and often misdiagnosed disease. The disease causes high blood pressure in the pulmonary arteries. This makes it harder for the blood to flow through the lungs to pick up oxygen. This causes potentially life-threatening consequences such as right heart failure. When diagnosed in time, treatments can be administered that improve quality of life and may prolong it. At this time there is no cure; but we believe through research we will find the cure for PH.
Many thanks for your support -- and don't forget to forward this to anyone who you think might want to support the cause as well!