Kayleigh's PHight: Peace, Love & Cure Pulmonary Hypertension

Kayleigh's PHight: Peace, Love & Cure Pulmonary Hypertension Photo
Kayleigh's PHight: Peace, Love & Cure Pulmonary Hypertension Photo
Kayleigh's PHight: Peace, Love & Cure Pulmonary Hypertension Photo

The Story

EVENT DATE: Apr 16, 2016

Timed 5K                                               Raffle
1 Mile Fun Run                                      Food
Silent Auction                                        Entertainment
                                TONS of Fun, Rain or Shine!!!


To sign up for the 5K or 1 Mile Fun Run:

- As an individual: Click "Register" above.

- As a member of a team: Join an existing team below or click "Set Up Your Fundraiser" to create your own team. Once you have a team, click "Register" from your team page


To donate without registering, click "Donate"   


7:30am On Site Registration
8:00am PreRace Announcements
8:15am Auction and Raffle Begin
8:30am 1 Mile Fun Run
9:00am 5K
10:00am Awards Presented
11:00am Auction and Raffle End


*All 5K participants registered before 3/23/16 will receive a race shirt and award
*All Fun Run participants registered before 3/23/16 will receive an award (race shirt may be purchased separately by contacting Event Organizer Jessica Johnson)
*Participants registered for the 5K can participate in the Fun Run for $5
*Participants under 5 years of age can participate for FREE but shirt and award are not included.  They may be purchased separately.  Limited supply available.
*Awards will be given for largest team, team/participant who raises the most donations (above registration) as well as 5K awards for 1st and 2nd place overall, age groups and complete team finishers.


Kayleigh Johnson is a 9 year old from Lake Charles, LA. She is a brave, friendly and extremely lovable little girl who, on July 11, 2014, was diagnosed with Idiopathic Pulmonary Hypertension. Throughout her battle, many people have formed a team to show their support and love for her. With this team Kayleigh's PHight was formed.


We are raising awareness of this extremely rare illness which often goes undiagnosed. We are raising awareness in hope that someone will receive a diagnosis in time to save their life. Often by the time a diagnosis is received, there aren't many treatment options available.


We are raising funds for the Pulmonary Hypertension Association. They provide hope through support, education, advocacy and awareness to PH patients and their families as well as research.


Research will lead to new treatments and find preventative measures for Pulmonary Hypertension. Those will then lead to a CURE.


Pulmonary Hypertensioin:


When people hear the term hypertension they usually think about high blood pressure which is checked by using a cuff on your arm. This type of high blood pressure is common and can usually be controlled and treated with diet, exercise and/or medication. However, there is another type of high blood pressure.


The right side of the heart pumps blood to the lungs. In the lungs, oxygen gets added to the blood and sent to the left side of the heart in order to be pumped to the rest of the body.


This circulation of blood through the lungs can develop high pressure. Increased blood pressure in the lungs is called Pulmonary Hypertension (PH). The vessels in your lungs are very sensitive to an increase in pressure and respond in complex ways. The blood vessel walls become thick, making it hard for them to carry blood. This causes blood to get backed up all the way to the heart. The heart must pump harder to push blood through the lungs, putting stress on the heart and reducing the amount of oxygen able to reach the rest of the body. The stress being put on the heart may lead to heart failure.


Heart failure is the number one cause of death in patients with PH. Pulmonary Hypertension is a progressive and life-threatening illness which is very difficult for physicians to diagnose and treat. Although Pulmonary Hypertension was first recognized in the 1950s, there were no treatments until the late 1980s. Today there are 13 treatments approved by the FDA to slow the progression of the disease and ease symptoms in adults. But there are NO treatments approved for use in children. There is also NO cure! However, new therapies are decreasing the death rate and improving quality of life for those diagnosed early enough.


Common symptoms include feeling faint, shortness of breath as well as swelling in the arms and legs. Because it shares symptoms with other, more common illness such as asthma, it takes an average of 2.8 years to receive an accurate diagnosis.  By the time a diagnosis is received, most patients have seen 3 doctors and on average 75% of those patients have advanced PH.


In the late 1940s, a professor at the University of Maryland School of Medicine coined the phrase, “When you hear hoof beats think horses, not zebras”. This phrase is still used to teach medical students how to reach a diagnosis: doctors learn to assume that common symptoms suggest common illnesses. The zebra has become the symbol for rare illnesses such as Pulmonary Hypertension, as the zebra is a metaphor for an unexplained diagnosis. Similar to a horse but the zebra is very different.


Twenty-five million people worldwide have been diagnosed with PH. It usually occurs with other diseases or conditions such as pregnancy, sleep apnea, thyroid disease, congenital heart disease, lung disease, rheumatic disease or the use of certain diet pills. But there is also a type of PH classified as Idiopathic which means there is no cause or underlying condition.


There is no age limit for PH. Children as well as adults get it. PH sees no race or ethnic background. Women are 4x more likely to develop Idiopathic PH than men but men do still make up a large percentage of patients diagnosed.


For more information go to: http://www.PHAssociation.org