September 20, 2017
BENEFITING: FAMILIAL HYPERCHOLESTEROLEMIA FOUNDATION
EVENT: Race for FH
EVENT DATE: Sep 25, 2017
Mileage Tracker: 55
As many of you already know, our family has been affected by a genetic disorder called Familial Hypercholesterolemia, or FH. When a parent carries the FH gene, they have a 50% chance of it being passed down to their child. My father's mother, Rose Levesque, had FH and died of a heart attack at age 69. My father, Ray Levesque, also had FH and suffered from severe heart disease most of his adult life. Dad passed away in 2004 at the same age of 69 following major open heart surgery. I have the FH gene and unfortunately, have passed it down to my son, Owen.
I am pledging to run 69 miles from September 2 - 24 in honor of the 69 years of my father and grandmother's lives. All proceeds that I raise from this fundraiser will be donated to the FH Foundation which works tirelessly to help people that have been affected by this disorder and helps bring awareness to those that may not yet know they have it.
September is cholesterol awareness month and September 24 is FH Awareness day. I am asking for 3 simple things this month from family and friends in order to help me as an advocate for FH.
First, PLEASE have your cholesterol checked if you have not done so already. The Academy of Pediatrics recommends ALL children have their cholesterol tested by age 10 and at age 2 if there is a family history of FH. Please, know your numbers along with your children's numbers.
Second, will you support the efforts of the FH Foundation and help me meet my goal? I will be finishing the last few miles of my 69 mile goal in Miami on September 24 at the FH Global Summit accompanied by other FH patients and doctors from around the world. I am thrilled to be able to run as my father could not walk a quarter of a mile in his 40's without having chest pain.
Finally, will you please SHARE this message with others and help bring awareness of this life-threatening disorder by "liking" the FH Foundation FB page or following @TheFHfoundation on twitter. We now have the knowledge and resources to effectively help people with FH and the next step is finding them. The FH Foundation is a resource that would have greatly benefited my grandmother and father. Luckily, Owen and I have a much better chance of a long, healthy life because of the research and medications that are now available to us.
Thank you for your support!