The face behind Team Jelly.
December 25, 2016
The Epilepsy Foundation is very near and dear to my wife & I. Our oldest daughter Anjelica (Jelly) was diagnosed with Infantile Spasm aka West Syndrome & Lennox Gastaut Syndrome at 3 1/2 months old. Lennox-Gastaut syndrome is a severe form of epilepsy. Seizure types, which vary among patients, include tonic (stiffening of the body, upward deviation of the eyes, dilation of the pupils, and altered respiratory patterns), atonic (brief loss of muscle tone and consciousness, causing abrupt falls), atypical absence (staring spells), and myoclonic (sudden muscle jerks). There may be periods of frequent seizures mixed with brief, relatively seizure-free periods. Most children with Lennox-Gastaut syndrome experience some degree of impaired intellectual functioning or information processing, along with developmental delays, and behavioral disturbances. Today Jelly is 18 years old, non-verbal, completely dependent on us to care for her, however, her smile gives us the strength to keeps going, to help find a cure. In our time of need, the Epilepsy Foundation has provided us with endless resources, support & hope. We are just trying to give back so that this foundation can continue to give to other families in need of the Resources & Support that we know first hand, helps tremendously. Please donate what you can, every dollar counts!