Dear Friends and Family,
James and Lila's good friends have been diagnosed with a rare and fatal disease. It's every parent's worse nightmare and in March of 2015, Kristen and Gordon Gray's girls were diagnosed with Batten CLN6. It’s a neurodegenerative brain disease that takes away their childhood, then takes away the child. Children with this disease loose their ability to walk, talk, feed themselves, breathe on their own and eventually pass away. This all happens very quickly and these children usually do not live past the age of 12.
You can watch a short video with more about their story here: https://vimeo.com/129076730
There is HOPE if you help support and donate. A medical research team is working on a treatment that could SAVE Charlotte and Gwenyth if the funds are raised. Lets do this! Please join our family and donate now through this website. The money raised will be used for immediate treatment on both Charlotte and Gwenyth and every donation, big or small, could be the difference in saving these two beautiful girls.
Thank you for your support! The Reinstein Family