The INADcure Foundation is a 501c3 nonprofit charity whose mission is to support the development of treatments, including a cure, for Infantile Neuroaxonal Dystrophy (INAD) and other forms of PLA2G6-related neurodegeneration (PLAN).
We are the only U.S. based nonprofit organization focused exclusively on bringing breakthrough treatments, and one day a cure, to all children living with INAD. We facilitate communication and collaborations between academia, research institutions, and biotech and fund the most promising INAD research. We are proud to have been selected to be part of the Chan Zuckerberg Initiative’s Rare As One Network. This initiative supports organizational capacity building and infrastructure needs, and will allow us to build, grow and manage our research network to improve collaboration and accelerate the study INAD. Our work also includes educating the public about INAD and other forms of PLA2G6-related neurodegeneration, advocating for better access to treatment, and supporting the families and caregivers of children diagnosed with INAD worldwide.