EVENT DATE: May 01, 2015
I'm turning 40 on May 1st! I'm thrilled and very thankful to be here. The world is my oyster and I have taken advantage of every opportunity placed in my path. Everyone should have the same chance.
I'm dedicating this milestone Birthday to my nephew Jonah.
Jonah suffers from an ultra ultra rare genetic disease, Sanfilippo Syndrome type C. Jonah is my hero: he lives life one day at a time and parties harder then anyone I know (it runs in the family). Jonah deserves a chance at life. It's with a heavy heart that I say, that Jonah needs help in fighting his fate.
Sanfilippo is FATAL. Without a treatment, in a few precious years Jonah will lose all the skills that he has learned. He will be trapped in his own body, not able to talk, walk, or eat on his own, profound brain damage will overcome him.
I have expensive tastes so donate accordingly. Help me save Jonah. A treatment is within our reach!!!!! It's up to us to make it happen. http://jonahsjustbegun.org/