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Heterotaxy Syndrome is a rare illness affecting the placement of organs uniquely in each baby born with this syndrome. Many have severe heart defects, GI abnormalities, lung problems, and immune deficiency. These children often go through multiple surgeries and hospitalizations. Approximately 80% will pass away before their first birthday. We hope to foster a supportive community and educate the medical professionals. With medical technology advancing, we have the power to save lives.

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