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Global Genes

Allies in Rare Disease

globalgenes.org Tax ID 26-3331487


Global Genes is a leading rare disease patient advocacy organization whose mission is to connect, empower, and inspire the rare disease community. With international scope, Global Genes develops educational resources, programs, and events that unite patients, advocates, and industry experts. Committed to fostering these meaningful connections, Global Genes is driven to catalyze therapeutics and cures for the estimated 7,000 rare diseases that impact approximately 1 in 10 Americans, and 350 million people worldwide.