BENEFITING: CURE SANFILIPPO FOUNDATION
EVENT: The Woodlands Marathon 2016
EVENT DATE: Mar 05, 2016
Will Byers wrote -
We are Fueled by WILL Power and are running to raise funding and awareness for Sanfilippo Syndrome research! We are running in honor of Will Byers, a 5 year old from Spring, TX who was diagnosed with Sanfilippo Syndrome, Type B in April 2015. Sanfilippo Syndrome is a rare, terminal genetic disorder in which the body lacks a specific enzyme to break down cellular waste, leading to a terminal buildup in cellular tissue and organs leading to premature death. 1 in 70,000 children are afflicted with this terrible disorder.