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Miron Lulic's Fundraiser:

Families of SMA (spinal muscular atrophy)

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BENEFITING: Cure SMA

ORGANIZER: Ellen

EVENT: Run Long Beach 2013

Miron Lulic

THE STORY:

Ellen Perry wrote -

Families of SMA is the world’s leader focused on funding SMA research to develop a treatment and cure for the disease. The successful results and progress that the organization has delivered, from basic research to drug discovery to clinical trials, provide real hope for families and patients impacted by the disease. The charity has invested over $55 million in research and has been involved in funding half of all the ongoing novel drug programs for SMA.

Families of SMA is a nonprofit 501(c)3 organization, with 31 Chapters and 90,000 members and supporters throughout the United States. The organization’s work has produced major discoveries, including identification of the underlying cause and a back-up gene for the disease, which provides a clearly defined target for disease altering therapies. The organization is also dedicated to supporting SMA families through networking, information and services and to improving care for all SMA patients.

DONATE

To This Fundraiser

$355

MONEY RAISED
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  • Jarrod Bassin

     

  • Uncle Bartholomeus

    $10

  • Tim Lin

    $100

  • Dinh Nguyen

    $10

  • Lenny, Cyndi, Cassandra & Cayden Phan

    $25

  • Harry

    $50

  • Christina Jobe

    $25

  • Diane Barbee

    $20

  • Steve Hong

    $25

  • Anonymous

    $40

  • Alex Edens

    $25

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36% Raised of$1,000 Goal

Fundraise for this Campaign

The Team: $2,720 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Brianne Gulizia

Amount Raised

$805

 

161% Raised of$500 Goal

Fundraiser Title

Michelle Slack

Amount Raised

$550

 

110% Raised of$500 Goal

Fundraiser Title

Kim Garcia

Amount Raised

$430

 

143% Raised of$300 Goal

Fundraiser Title

Miron Lulic

Amount Raised

$355

 

36% Raised of$1,000 Goal

Fundraiser Title

Britney Guedea

Amount Raised

$300

Fundraiser Title

Michael McGowan

Amount Raised

$260

 

87% Raised of$300 Goal

Fundraiser Title

Ellen Perry

Amount Raised

$10

 

100% Raised of$10 Goal

Fundraiser Title

Tracy Vineyard

Amount Raised

$10

Donor Comments

Alex Edens

Alex Edens

DONATION: $25

7 years ago

Anonymous

ANONYMOUS

DONATION: $40

7 years ago

Steve Hong

Steve Hong

DONATION: $25

7 years ago

Diane Barbee

Diane Barbee

DONATION: $20

7 years ago

Christina Jobe

Christina Jobe

DONATION: $25

Skylar Bahrenburg and The Bahrenburg Family 7 years ago

Harry

Harry

DONATION: $50

7 years ago

Lenny, Cyndi, Cassandra & Cayden Phan

Lenny, Cyndi, Cassandra & Cayden Phan

DONATION: $25

7 years ago

Dinh Nguyen

Dinh Nguyen

DONATION: $10

7 years ago

Tim Lin

Tim Lin

DONATION: $100

7 years ago

Uncle Bartholomeus

Uncle Bartholomeus

DONATION: $10

Never trust a man in a swimcap :) 7 years ago