Awareness, Education, and Research since 2003
The Fibromuscular Dysplasia Society of America (FMDSA) is a not-for-profit patient advocacy organization working towards better diagnosis and treatment of Fibromuscular Dysplasia (FMD). We have become the recognized leader in support of FMD awareness, education, and research. FMDSA works to inspire and facilitate collaboration between national and international organizations devoted to FMD and FMD-related research, education, and patient care.
In 2009, the FMD Registry was created, and presently over 3,000 patients have participated. We currently have 17 Centers throughout the United States actively enrolling patients. The Registry allows research and studies to be conducted to help patients and the medical community better understand and manage this rare disease. Hopefully, it will one day help us to determine a cause and cure for FMD.
On Nov 12, 2020, FMDSA was honored to be presented with the Champion of Hope Award by Global Genes. FMDSA won the award due to its outstanding advocacy efforts. FMDSA also earned the Top Rated Great Nonprofits Award! In 2020, we were also excited to receive the Guide Stars Platinum Seal of Transparency.