BENEFITING: Cure JM Foundation
EVENT DATE: Jan 17, 2016
You can be a hero to a child with JM.
Each year, approximately 2 to 4 children in a million in the United States are diagnosed with Juvenile Dermatomyositis (JDM) and Juvenile Polymyositis (JPM), the rare and life-threatening autoimmune diseases collectively known as Juvenile Myositis (JM). JM causes the body’s own immune system to attack healthy cells and tissues, which can cause pain, weakness, inability to walk and disfigurement. In some severe cases it can even be fatal.
In 2010, our daughter Emily was diagnosed with Juvenile Dermatomyositis. She wasn't able to walk, she was losing her voice, and her ability to swallow. Recovery was long, hard, and difficult. The medications hurt her almost as much as they helped. The only real medications are steroids, which can cause devastating weight gain as well as brittle bones, glaucoma, and adrenal insufficiency. There has to be a better way. And there is no cure…YET.
And that’s where you come in.
On January 17th, 2016, families will be participating in the St. Pete Beach Classic to raise awareness of JM and raise funds for JM research. It’s all part of Cure JM’s 2016 National Educational Conference and Fundraiser, a multi-day event designed to help JM Families and Physicians connect while sharing the latest information in JM research and treatments.
Please consider making a gift now. Over 90% of each gift goes directly to Juvenile Myositis research and education programs, so your gift will bring us closer to a cure.
What could be more heroic?