Organized by: Whitney Ortiz
Update: Website launched, events organized, partnerships created!
May 21, 2017
Provide continuous complementary care to children with complex medical conditions and their caregivers.
In honor and loving memory of one of our twin daughters, Eliana Lucia Ortiz, we are creating a non-profit to provide continuous complementary care to children with complex medical conditions and their caregivers. Eliana ("Eli") passed away at 3 years old from a heart condition and after spending the majority of her life in the hospital. We aim to reduce the stress, pain, fear, trauma, anxiety, and depression that many children with complex medical conditions and their caregivers often experience.
Eliana's Light will take a systems-based and collaborative approach towards connecting the whole family to complementary care. By supporting the development of an Integrative Medicine (IM) program at Children's National Medical Center and connecting families to complementary care services available in the local community, Eliana's Light hopes to improve the whole family's wellness and well-being. We hope this will become a replicable and scalable model that can operate in communities around the world.
We have directly experienced the value of complementary care (e.g. massage, acupuncture, yoga, meditation, essential oils, mind-body medicine, etc.) and believe strongly in supporting the body, mind and spirit in a holistic way.
Some of the complementary care support services we will provide families include: Complementary Care Comfort Kits that contain tools and tips for reducing stress; contact sheets of local complementary care providers, "family friendly pharmacies", and early childhood development support services; complementary light housekeeping and meal delivery; gift certificates to frequented places; and other support that makes the every day experience for the child and his/her caregiver a little easier.
Your donation to this fund will:
- support the development of a new Integrative Medicine (IM) program at Children’s National Medical Center (CNMC) in Washington, DC, which will serve as a model for other children's hospitals; and
- help families with children who have complex medical conditions in the Washington, DC community.
During Eliana’s beautiful life, she spent a significant amount of time at CNMC where she was treated for cardiomyopathy; was on a Berlin Heart, a ventricular assist device; and received a heart transplant. The team of people who cared for her and our whole family at CNMC and in the local community is extraordinary, and we are eternally grateful to them. Complementary care can be provided in addition to and alongside necessary medical care. Your donation to this fund will provide invaluable support to children like Eliana, and their families.