mirelapokrajac's profile image - click for profile

Mirela Pokrajac's Fundraiser:

2016 RUN FOR EB SHAMROCK SHUFFLE

Mirela's Photo
Mirela's Photo
Mirela's Photo
 

owner profile imageI AM RUNNING FOR PRINCESS TEJA
February 23, 2016

At just 4 months old, Teya had an experimental bone marrow transplant which helped her condition.  However, it was not a cure.  Now almost  See more

BENEFITING: EB Research Partnership

ORGANIZER: EB Research Partnership

EVENT: 2016 Shamrock Shuffle 8K

EVENT DATE: Apr 03, 2016

Mirela Pokrajac

THE STORY:

The EB Research Partnership (“EBRP”) is the largest nonprofit dedicated to funding research aimed at treating and curing Epidermolysis Bullosa (“EB”), a devastating and life-threatening genetic skin disorder that affects children from birth.
Individuals with EB lack a critical protein that binds their layers of skin together.  Without this protein, even the slightest touch or friction can cause blisters and wounds all over the body—inside and out.
By joining TEAM EBRP, know that you are making a difference in the lives of those affected by this disorder.  Together, we can help bring life saving treatments to those who suffer daily from EB.  We greatly appreciate your support.  For more on EB and the strides we are taking for a cure please visit www.ebresearch.org
If you have any questions about the Shamrock Shuffle please contact Abbie Levine at abbie@ebresearch.org
Many people on our team are running in honor of Teodora (Teya) Radovic who was diagnosed at birth with Recessive Dystrophic EB. At just 4 months old, Teya had an experimental bone marrow transplant which helped her condition.  However, it was not a cure.  Now almost two years old, Teya is a loving, smart, and adventurous little girl. Despite battling EB every day, she is full of life and doesn't let this condition get in her way. We are participating this year in honor of this amazing little fighter and others like her!

DONATE

To This Fundraiser

$250

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Jela Premovic

    $50

  • Anonymous

     

  • Aleks Radovic

    $40

  • WHITE STAR ELECTRIC INC

    $100

  • Stojana Ivancevic

    $50

  •  
  •  
  •  
 

250% Raised of$100 Goal

Fundraise for this Campaign

The Team: $5,150 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Milana Radovic

Amount Raised

$1,755

 

176% Raised of$1,000 Goal

Fundraiser Title

Michael Pokrajac

Amount Raised

$1,600

 

80% Raised of$2,000 Goal

Fundraiser Title

Joanne Winkler

Amount Raised

$325

Fundraiser Title

Mirela Pokrajac

Amount Raised

$250

 

250% Raised of$100 Goal

Fundraiser Title

Sanja Matijevic

Amount Raised

$195

 

195% Raised of$100 Goal

Fundraiser Title

Ana Tasevska

Amount Raised

$150

Fundraiser Title

Mira Culic

Amount Raised

$125

 

125% Raised of$100 Goal

Fundraiser Title

EB Research Partnership

Amount Raised

$100

Donor Comments

Stojana Ivancevic

Stojana Ivancevic

DONATION: $50

4 years ago

WHITE STAR ELECTRIC INC

WHITE STAR ELECTRIC INC

DONATION: $100

4 years ago

Aleks Radovic

Aleks Radovic

DONATION: $40

Thanks to you and Mikey for all your love and support. We are getting closer to finding a cure for Teja. She and all of her butterfly friends appreciate your love and support! Thank you! 4 years ago

Anonymous

ANONYMOUS

4 years ago

Jela Premovic

Jela Premovic

DONATION: $50

4 years ago