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Michael Pokrajac's Fundraiser:

2016 RUN FOR EB SHAMROCK SHUFFLE

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owner profile imageRun for Teja
February 22, 2016

Dear friends, On April 3rd I will be running the Shamrock Shuffle 8k Marathon for EB Research and Princess Teja  See more

BENEFITING: EB Research Partnership

ORGANIZER: EB Research Partnership

EVENT: 2016 Shamrock Shuffle 8K

EVENT DATE: Apr 03, 2016

Michael Pokrajac

THE STORY:

EB Research Partnership wrote -

The EB Research Partnership (“EBRP”) is the largest nonprofit dedicated to funding research aimed at treating and curing Epidermolysis Bullosa (“EB”), a devastating and life-threatening genetic skin disorder that affects children from birth.

Individuals with EB lack a critical protein that binds their layers of skin together.  Without this protein, even the slightest touch or friction can cause blisters and wounds all over the body—inside and out.

Join TEAM EBRP at the Bank of America Shamrock Shuffle, April 3, 2016 and help us in the race to cure EB.  You can do this simply by registering as a runner at www.shamrockshuffle.com. Remember to choose EB Research Partnership as your affiliated charity and pay the race registration fee.  Once you have registered, you can set up your own fundraising page here by clicking “Join the Team” Under “The Team” tab.  All team members must agree to a minimum fundraising goal of $250 benefiting EBRP.  Along with your required minimum fundraising goal of $250 EBRP will provide you with an official TEAM EBRP race shirt.

By joining TEAM EBRP, know that you are making a difference in the lives of those affected by this disorder.  Together, we can help bring life saving treatments to those who suffer daily from EB.  We greatly appreciate your support.  For more on EB and the strides we are taking for a cure please visit www.ebresearch.org

If you have any questions about the Shamrock Shuffle please contact Abbie Levine at abbie@ebresearch.org

DISCLAIMER OF LIABILITY AND INDEMNIFICATION * * * IMPORTANT * * * PLEASE REVIEW CLOSELY

I understand that training for and participating in the Shamrock Shuffle is a potentially hazardous activity and involves risk and dangers of serious bodily injury, some of which may not be foreseeable.  I agree not to enter and participate in Shamrock Shuffle unless I am medically able and properly trained.  I agree to abide by any decision of an event official regarding my ability to safely start and complete the event.  I am voluntarily entering the Shamrock Shuffle, and I assume all foreseeable and unforeseeable risks associated with training for and participating in the Shamrock Shuffle, including, but not limited to: falls; contact with other participants, spectators, event personnel, or others; weather-related injuries, including those caused by heat, humidity, precipitation, lightning, and wind; traffic; course conditions; and acts of terror.  Having read this disclaimer and knowing these facts, and in consideration of your acceptance of this application, I, for myself and anyone entitled to act on my behalf, waive and release the EB Research Partnership, its employees, directors, officers and representatives, and successors (hereinafter collectively the “Releasees”), from present and future claims and liability of any kind, known or unknown, arising out of my training for and participation in the Shamrock Shuffle or related activities, even though such claim or liability may arise out of negligence or fault on the part of the EB Research Partnership and the Releasees or any other party.  If, despite this release, I, or anyone on my behalf, makes a claim against the EB Research Partnership and the Releasees related to the Shamrock Shuffle, I agree to indemnify and hold harmless the EB Research Partnership and the Releasees from any litigation expenses, attorneys’ fees, loss, liability, damage, or cost it may incur due to the claim, whether the claim is based on the negligence of the EB Research Partnership, the Releasees or otherwise.

DONATE

To This Fundraiser

$1,600

MONEY RAISED
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  • Milana Radovic

    $20

  • Kris Stojanovski

    $20

  • Marissa Bernal

    $10

  • All American Painting and Decorating

    $500

  • Stevan Rakic

    $25

  • Marko Beader

    $25

  • Dankic

    $25

  • UFC 196 Poker Pot

    $120

  • First Choice Logistics

    $500

  • Richard & Alice Jousma

    $100

  • Aleks Radovic

    $155

  • Bora Grujic

    $100

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80% Raised of$2,000 Goal

Fundraise for this Campaign

The Team: $5,150 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Milana Radovic

Amount Raised

$1,755

 

176% Raised of$1,000 Goal

Fundraiser Title

Michael Pokrajac

Amount Raised

$1,600

 

80% Raised of$2,000 Goal

Fundraiser Title

Joanne Winkler

Amount Raised

$325

Fundraiser Title

Mirela Pokrajac

Amount Raised

$250

 

250% Raised of$100 Goal

Fundraiser Title

Sanja Matijevic

Amount Raised

$195

 

195% Raised of$100 Goal

Fundraiser Title

Ana Tasevska

Amount Raised

$150

Fundraiser Title

Mira Culic

Amount Raised

$125

 

125% Raised of$100 Goal

Fundraiser Title

EB Research Partnership

Amount Raised

$100

Donor Comments

Bora Grujic

Bora Grujic

DONATION: $100

4 years ago

Aleks Radovic

Aleks Radovic

DONATION: $155

Teodora and all of her butterfly friends appreciate your love and support! Let's get you closer to that amazing goal! Thank you! 4 years ago

Richard & Alice Jousma

Richard & Alice Jousma

DONATION: $100

4 years ago

First Choice Logistics

First Choice Logistics

DONATION: $500

4 years ago

UFC 196 Poker Pot

UFC 196 Poker Pot

DONATION: $120

4 years ago

Dankic

Dankic

DONATION: $25

4 years ago

Marko Beader

Marko Beader

DONATION: $25

I'll be running it with you guys! 4 years ago

Stevan Rakic

Stevan Rakic

DONATION: $25

Good lucky buddy 4 years ago

All American Painting and Decorating

All American Painting and Decorating

DONATION: $500

4 years ago

Marissa Bernal

Marissa Bernal

DONATION: $10

4 years ago