Being 4 should be fun. So should being 5, and 6, and 7...but Katherine Alderfer has a medical file that's more than 8 inches thick. That's because at age 3, she was diagnosed with Juvenile Myositis (JM).
It began in the spring of 2010 with sore leg muscles, but it quickly progressed to the point that she couldn't climb the stairs in her home. The aggressive treatment she's had to endure has included medicines that have given her cataracts and made her bones brittle and caused fractures in her vertebrae, making a walker or wheelchair a necessity to get around. JM can affect virtually any system of the body (heart, lungs, skin, muscles, etc.), and sunlight or the common cold can worsen the disease.
Thankfully, today Katherine is doing better. She's benefitted not only from the loving care of her parents, but also from that of her twin sister Caroline who has been there for every single infusion and is her sister's biggest cheerleader.
And now Katherine and her family have taken charge and are working hard for a cure for Juvenile Myositis! They have gathered local businesses together for a Craft Fair at their elementary school. The event features several vendors who have all agreed to donate a portion of their proceeds to Cure JM through Kristine’s CrowdRise Fundraising Page. "It's important to raise money for Cure JM," says Kristine, Katherine's mother, "because JM is an 'orphan disease.'"
Please help us find a cure so that no other child will have to suffer like Katherine.