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Steph Brown's Fundraiser:

Cure JM

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owner profile imageThank you thank you thank you!
July 18, 2016

Thanks so much for all the love and support for Cadence and her fellow fighters! It's people like you ALL that enable jay and I to be the best  See more
Steph Brown

THE STORY:

 

Hi everyone! Hate to be that person who seemingly posts fundraisers all the time- but I promise Cadence and all her fellow JM warriors are very deserving! There is only one foundation for JDM research- and this foundation needs our support for research funding, educating for earlier diagnosis, and most importantly a CURE!
   Cadence has finally made positive strides the last year with the IVIG infusions. Every two weeks she has a home care nurse who comes and starts her IV, premedicates her and then administers the IVIG. It's an all day affair- but Cadence takes it like a trooper. 
I would say the most trying part of her disease at this time isn't the weekly shots or the biweekly IV starts, BUT the need for constant sun and heat protection. There is no get up and go anymore-- we have to research the weather in advance, avoid anything outside during peak sun hours and totally avoid outside on humid days. The days and times we do arrange our schedule so she can be outside we have to load up on the sunscreen and SPF clothing, have a water bottle in hand and of course a hat! People told me that one day all this would become second nature or the "new norm." Two years in and I have yet to feel like it's the "new norm", and hardly second nature believe it or not. It's a huge pain in the butt!! sunscreen + hat + a 3 yr old = torture! I'm hoping with more research, more answers, more education & more treatment options- there will be a day where JDM kids can get up & go, can spend hours in the pool or beach with their friends, can have family vacations on the lake----/ but of course all this comes with funding.  

    Our amazing friends & family have already gone above & beyond supporting Cadence & our family- which makes asking for more help a little harder. But this donation is for ALL the kids, each with their own treatment plan, symptoms And disease course.

 

  JDM is a life-threatening disease that causes a child's own immune system to attack healthy tissue and cells. It can cause pain, weakness, inability to walk, disfigurement, organ failure and even lead to death. Juvenile Myositis can affect virtually any system of the body, the heart, lungs, skin, muscles, and more. Though the main symptoms & medications are the same- each child varies with severity, medication outcomes, side effects and pattern of remission/relapse. 

Support from friends and family has allowed Cure JM to drive JM research forward at an unprecedented pace in the last year, funding ten research grants and two treatment/research centers. so starting today at noon, the foundation who raises the most money in 7 days will be awarded an extra 10k for their cause. Pretty special! 

Disease doesn't discriminate- the feeling you have when it affects  your child is indescribable- I wouldnt wish this feeling on anyone. Please help make a difference! 

"Though she be but  little, she is fierce."  <3>

love Steph, Jay, Conner & Cadence

 

 

 

 

 

 

 

 

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DONATE

To This Fundraiser

$4,590

MONEY RAISED
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  • Carolyn Rosa

    $50

  • Melissa Morris

    $75

  • Elizabeth Doherty

     

  • Melanie Brown-Lyons and Family

     

  • Anne Marie and Mike

    $50

  • Paula Dowd Scherry

    $25

  • Linda DaGraca

    $50

  • The Hutchinson Family - Brea, Keith, Trey & Avery XO

    $100

  • The Mitza Family

    $25

  • Vickie Petralias

    $25

  • The Clemmers

    $50

  • The Glass Family

    $50

  • Uncle Seth

    $50

  • Nana & Grampy

    $100

  • Jenn Creamer

     

  • Lee, Bill, Billy and Misty Galarneau

    $50

  • The Skypeck Family

     

  • Julie Ferguson

    $50

  • The Young Family

    $50

  • Matt Manganaro

    $50

  • Amelia and Emmie

    $50

  • Mandy

     

  • Patti Haggerty

    $100

  • Ryan and Evan

    $50

  • Melissa M

    $25

  • MARILYN O'LEARY

    $100

  • Lina Sganga

    $25

  • Melissa Kerchner McDonagh

     

  • Joey & Andreea

    $50

  • Jen Chiappone

     

  • Rosemarie Pileski

     

  • Karen and Matt Pimental

    $200

  • Dingle kids

    $50

  • Graunt

    $50

  • Karen MacIsaac

     

  • The Chaves Family

    $50

  • Carmen Ortiz

     

  • Courtney Guilmette

    $25

  • BaBa and PaPa

     

  • Eileen O'Connell and family

    $50

  • Nane and family

    $50

  • Great Auntie Donna

    $100

  • Sherilyn, Myron & baby Pea

    $50

  • Flo

    $50

  • Anushya Murale

    $50

  • Sadie Dumke

     

  • Laurand Bryant

    $25

  • Anonymous

    $25

  • Frank and Beth

    $50

  • The Matta Family

    $50

  • Sarah Stanton

     

  • The Ethier Family

     

  • Victoria Zivyon

    $50

  • Joan Spiegelman

    $25

  • Anonymous

    $25

  • mary strunk

    $50

  • Ted & Jen McMellen

     

  • Klamn Family

    $25

  • Fred & Anne Curtis

     

  • Samantha Keith

    $25

  • The Spector Family

     

  • The Ronzios

    $50

  • Kara Toomey and family

     

  • Kate & Dave Paulini

     

  • The Rosa Family

    $50

  • Sheila Masterson

     

  • Katy, Brendan & Colin Young

    $25

  • Michelle, Jeff & Joanie

    $25

  • Debby Scolaro

    $25

  • Kristin, Isabella and Joe

     

  • Lynn Barbuto

    $25

  • Hynes family

    $100

  • Haylee, Sammi, Nico and Lexy

    $100

  • Maria, Sophia, Amelia and Raj

    $100

  • Kim Jones

     

  • The Galarneau Family

    $50

  • Cadence Brown

    $25

  • Kelly , Grace & Julia

    $50

  • Kirsten Larrabee

    $50

  • The Libby Family

     

  • Jenny Tai

     

  • Anonymous

    $10

  • Jim McGrath

    $100

  • Stephanie Paine

    $25

  • Lia and Brett

    $100

  • Chris & Nancy Doherty

    $50

  • Jaime Doel Smith

     

  • Steph Brown

    $25

  • Lillian (hagman) Narekiewicz

    $50

  • Courtney Doherty

    $50

  • Mason, Declan & Everly

    $100

  • Robert Worden

    $100

  • The Heslin's

    $25

  • The Bonsignore Family

    $25

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92% Raised of$5,000 Goal

Fundraise for this Campaign

The Team: $4,955 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Steph Brown

Amount Raised

$4,590

 

92% Raised of$5,000 Goal

Fundraiser Title

Temprence Denton

Amount Raised

$340

 

7% Raised of$5,000 Goal

Fundraiser Title

Cure JM Foundation

Amount Raised

$25

 

0% Raised of$20,000 Goal

Fundraiser Title

Shannon Malloy

Amount Raised

$0

Fundraiser Title

Jessica Preston

Amount Raised

$0

Fundraiser Title

Bethany Caylor

Amount Raised

$0

 

0% Raised of$500 Goal

Donor Comments

The Bonsignore Family

The Bonsignore Family

DONATION: $25

4 years ago

The Heslin's

The Heslin's

DONATION: $25

4 years ago

Robert Worden

Robert Worden

DONATION: $100

4 years ago

Mason, Declan & Everly

Mason, Declan & Everly

DONATION: $100

4 years ago

Courtney Doherty

Courtney Doherty

DONATION: $50

4 years ago

Lillian (hagman) Narekiewicz

Lillian (hagman) Narekiewicz

DONATION: $50

4 years ago

Steph Brown

Steph Brown

DONATION: $25

Steph Brown 4 years ago

Jaime Doel Smith

Jaime Doel Smith

4 years ago

Chris & Nancy Doherty

Chris & Nancy Doherty

DONATION: $50

4 years ago

Lia and Brett

Lia and Brett

DONATION: $100

4 years ago