BENEFITING: Cure JM Foundation
ORGANIZER: Cure JM Foundation
EVENT: Austin Marathon 2017
EVENT DATE: Feb 19, 2017
It's been 9 years now. Mielle is 14 and can't even remember a time when she didn't have doctor appointments, blood draws and all manner of terrible drugs. Most recently, we've added IVIG, a drug that is administered intravenously over 14+ hours and makes her feel lousy for days (with potential for much worse side effects, most notably aseptic meningitis). Many JM kids do this every few weeks, for years. It makes my heart hurt.
But amazing things are happening with Cure JM and I am fired up! We have a new executive director with proven experience to push research further and faster than ever before, all with a laser focus on getting new and better treatments to our kids as soon as possible.
Never have I felt more hopeful about our potential to end our kids' suffering. Never has your donation to Cure JM meant more.
In February, I am once again running with Team Cure JM in the Austin Half Marathon to raise funds for Juvenile Myositis research. I will also teach my photography workshop to the teens and tweens at the conference - it's been a big hit the past two years!
Please, donate now and help us make strides toward the cure!
As always, I appreciate your support more than I can say. Thank you so much!
*Juvenile Myositis (JM) is a life-threatening disease that causes a child's own immune system to attack healthy tissue and cells. It can cause pain, weakness, inability to walk, disfigurement, organ failure and even lead to death. Juvenile Myositis can affect virtually any system of the body - heart, lungs, skin, muscles, and more. And there is no cure…YET.
Mielle was diagnosed at age 5.
More information at www.curejm.org