BENEFITING: Cornelia de Lange Syndrome Foundation, Inc.
ORGANIZER: Cornelia de Lange Syndrome Foundation, Inc.
EVENT DATE: Nov 06, 2016
This year I will be running my second marathon and proudly running again for Team CdLS. We are going to conquer all five boroughs of New York City! With every stride I know that I'm helping raise money and awareness for the CdLS Foundation.
The CdLS Foundation provides support to families with a loved one who was born with this rare genetic syndrome. They help conduct research and also provide guidance and assistance to these families.
I have been fortunate enough to meet some of these families and their strength is inspirational. Since meeting these families I have run further the I ever imagined and I've done it all for those with CdLS that can't run due to characteristics of the syndrome.
I am proud to run for Team CdLS knowing that these funds will go help the families and those living with CdLS. Please consider donating to this great cause. No amount is too small and it is all appreciated greatly.