%1$s Profile Image

Chromosome 9P- Network

The Chromosome 9p Minus Network is a nonprofit, parent-based support group with a mission to improve the lives of families affected by 9p Deletion Syndrome by connecting families, offering knowledge, and improving access to information about this rare genetic disorder.

www.9pminus.org Tax ID 34-1846713


The Chromosome 9p Minus Network is a continually growing non-profit organization which welcomes you to learn, share, support, and connect. Our Network is solely comprised of parents and caregivers of individuals worldwide diagnosed with Chromosome 9p Deletion Syndrome, also known as "9p Minus", "9p-," "Alfi's Syndrome," and/or "Monosomy 9p". For over 25 years, our Network families have been raising awareness by exchanging information, discussing challenges/achievements, and getting moral support for their 9p Minus family member. This syndrome is an extremely rare chromosome anomaly, so many families with a loved one diagnosed with a 9p Deletion are left feeling isolated and yearning for information. Thanks to this Network, families now have a place to turn.

Our Network strives to educate, foster hope, and develop a greater understanding amongst its members and the community at large. Whether you are already a Network family, a newly diagnosed family or someone who has been touched by a special person with 9p Minus