One week until the big run; two weeks until a fundraiser event!
April 29, 2018
BENEFITING: Children's Hospital of Pittsburgh Foundation
ORGANIZER: Children's Hospital of Pittsburgh Foundation
EVENT: 2018 Pittsburgh Marathon
EVENT DATE: May 06, 2018
Sarah Robb is running the full marathon and Erin Du Carme is running the half marathon -- both are raising money on behalf of our nephew, Marek. All support will go towards the bone marrow transplant fund through the Children's Hospital of Pittsburgh Foundation.
Here is little Marek-cle's Story
The nickname "Marek-cle" quickly took off within our little boy's first few days of life in January 2017. During seven long months in the NICU and even now, it's a constant reminder of the miracle that our little boy is still with us and doing better each day!
Marek is blood transfusion dependent due to a condition called congenital dyserythropoietic anemia, or CDA type II. Marek has a severe case of this rare genetic condition, so his body does not make red blood cells and relies on blood donors about every week to keep his veins full. His anemia put him on death's door even in utero, where he received four blood transfusions through his umbilical cord! The need for blood continued when Marek was born three months premature and shortly after suffered a life threatening bowel infection that affected him multi-facetly.
We are so thankful that Marek is home with his family now! He is the happiest baby even though he is still in the middle of his medical journey - receiving treatments 5x per week at the Children's to help his organs heal in preparation for a bone marrow transplant, which will cure the CDA type II. But we would not be this far if not for the prayers and generosity of family, friends and strangers.
So THANK YOU so much for giving in Marek's name, to bless others the way Marek has been blessed.
Kristin, Marek's mom
We are also planning three blood drive and bone marrow registry drives; please visit centralbloodbank.org and enter group code CU040004 to make an appointment.
1. Carnegie Mellon University, Monday Oct 9
2. Carnegie Mellon University, Monday Oct 30
3. New Life Christian Ministries, Monday Jan 15, 2018
if you would like to join the Bone Marrow Registry but cannot attend the above drives, please visit https://join.bethematch.org/Marek to request a swab kit.
Some photos by Marybeth Miller photography.