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Sarah Robb's Fundraiser:

Children's Hospital of Pittsburgh of Pittsburgh Foundation

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owner profile imageOne week until the big run; two weeks until a fundraiser event!
April 29, 2018

Two countdowns: 1 week until the marathon! 2 weeks until we host a fundraising event! If available, please consider attending our fundraising  See more
Sarah Robb

THE STORY:

Sarah Robb is running the full marathon and Erin Du Carme is running the half marathon -- both are raising money on behalf of our nephew, Marek.  All support will go towards the bone marrow transplant fund through the Children's Hospital of Pittsburgh Foundation.

Here is little Marek-cle's Story

The nickname "Marek-cle" quickly took off within our little boy's first few days of life in January 2017.  During seven long months in the NICU and even now, it's a constant reminder of the miracle that our little boy is still with us and doing better each day! 

Marek is blood transfusion dependent due to a condition called congenital dyserythropoietic anemia, or CDA type II. Marek has a severe case of this rare genetic condition, so his body does not make red blood cells and relies on blood donors about every week to keep his veins full.  His anemia put him on death's door even in utero, where he received four blood transfusions through his umbilical cord!  The need for blood continued when Marek was born three months premature and shortly after suffered a life threatening bowel infection that affected him multi-facetly. 

We are so thankful that Marek is home with his family now! He is the happiest baby even though he is still in the middle of his medical journey - receiving treatments 5x per week at the Children's to help his organs heal in preparation for a bone marrow transplant, which will cure the CDA type II. But we would not be this far if not for the prayers and generosity of family, friends and strangers.

So THANK YOU so much for giving in Marek's name, to bless others the way Marek has been blessed.

Thank you!

Kristin, Marek's mom

October 2017


We are also planning three blood drive and bone marrow registry drives; please visit centralbloodbank.org and enter group code CU040004 to make an appointment.

1. Carnegie Mellon University, Monday Oct 9

2. Carnegie Mellon University, Monday Oct 30

3. New Life Christian Ministries, Monday Jan 15, 2018

if you would like to join the Bone Marrow Registry but cannot attend the above drives, please visit https://join.bethematch.org/Marek to request a swab kit. 


Some photos by Marybeth Miller photography.

$5,573

MONEY RAISED
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  • Irem Sen

     

  • April Winwood

    $50

  • Dana Sciullo

    $25

  • Christa Moore

     

  • Ken Riordan

     

  • Scott Mackie

     

  • Anonymous

    $25

  • Todd and Hope Burtner

     

  • Dave Cannon

     

  • David Thompson

     

  • Ken and Patty Riordan

    $75

  • Linda Moore

    $50

  • Cory Barraclough

    $100

  • Nicole Kladny

    $50

  • Jason Zihmer

    $50

  • Jim and Rosa Hoffman

    $50

  • Dave Bonvenuto - Oberg

    $50

  • Kara Hovancik

    $25

  • Alicia Szarek

    $25

  • Erin and Jason Du Carme

    $160

  • Ellen Lenegar

    $75

  • Liza

    $100

  • Jaclyn and Jeffrey Cox

     

  • Lil Mikey Lewark

    $50

  • Ken Giacobbe

    $100

  • Michael & Diane Belmont

    $100

  • Sarah Guyer and Travis Armiger

    $50

  • Eric & Yoon Compher

    $50

  • The Cutt's

    $25

  • Cassandra Evanek

    $50

  • Glenn & Debbie Garnaut

    $100

  • Wendy Lawrence

    $50

  • Tracy Lucas

    $150

  • The Dixits

    $50

  • Jed & Therese Tatlow

    $25

  • Marty Weiner

    $100

  • Sarah and Kirk Loy

    $50

  • Michelle Price and Brian Antes

    $25

  • Jake

     

  • Matt McKendree

    $25

  • Robin Hurtt

    $50

  • The Stirrup Family

    $50

  • The Bodensteiner's

    $50

  • Jerzy Wieczorek

    $250

  • The Gray Family (Patty, Megan, Laura)

    $100

  • Anonymous

    $10

  • Jessica Lovering

    $50

  • Liza Reed

    $50

  • Matt & Tara Fincher

    $100

  • Anonymous

     

  • Liz Casman

    $25

  • Sarah Feicht

    $25

  • Jared and Maureen Cohon

    $100

  • Patti Steranchak

    $20

  • Anonymous

     

  • Angela Lai

     

  • Belinda and Craig Held

    $50

  • Cary Dieter and Brittany McCracken

     

  • Priyank Lathwal

    $25

  • Dana Sciullo

    $10

  • Anonymous

    $25

  • Steel Cactus Fundraiser

    $2,016

  • Anonymous

    $50

  • Anonymous

    $50

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Fundraise for this Campaign

The Team: $93,613 TOTAL RAISED SO FAR

Fundraiser Title

Arlen Janet

Amount Raised

$16,100

 

124% Raised of$13,000 Goal

Fundraiser Title

Sarah Robb

Amount Raised

$5,573

Fundraiser Title

Patrick Nelen

Amount Raised

$2,612

 

653% Raised of$400 Goal

Fundraiser Title

Abby Martin

Amount Raised

$2,170

 

181% Raised of$1,200 Goal

Fundraiser Title

Plamen Lilovski

Amount Raised

$2,164

Fundraiser Title

Shannon Volkar

Amount Raised

$2,140

 

107% Raised of$2,000 Goal

Fundraiser Title

Stef Walker

Amount Raised

$2,110

 

422% Raised of$500 Goal

Fundraiser Title

Christina Lopez

Amount Raised

$1,945

 

389% Raised of$500 Goal

Donor Comments

Anonymous

ANONYMOUS

DONATION: $50

1 year ago

Anonymous

ANONYMOUS

DONATION: $50

1 year ago

Steel Cactus Fundraiser

Steel Cactus Fundraiser

DONATION: $2,016

1 year ago

Anonymous

ANONYMOUS

DONATION: $25

2 years ago

Dana Sciullo

Dana Sciullo

DONATION: $10

2 years ago

Priyank Lathwal

Priyank Lathwal

DONATION: $25

I pray that God grants courage and heals everyone who is fighting this rare blood disease. 2 years ago

Belinda and Craig Held

Belinda and Craig Held

DONATION: $50

2 years ago

Angela Lai

Angela Lai

2 years ago

Anonymous

ANONYMOUS

2 years ago