BENEFITING: CELIAC DISEASE FOUNDATION
ORGANIZER: CELIAC DISEASE FOUNDATION
At 15 months old on June 28th 2013 my daughter Riley was diagnosed with Celiac Disease. In the months before her 2013 endoscopy and diagnosis things had gotten bad with Riley's health. She was very sick. Riley was labeled failure to thrive, she had fallen off weight/height charts, was throwing up consistently, had horrible constipation, weak immune system and had global developmentally delays. After a few doctors we took her to a GI Specialist at Cohen's Children's Hospital who diagnosed her instantly after hearing her story and ultimately gave her a blood test and endoscopy to confirm her disease. My wife and I were relieved to have finally figured out the causes of her many symptoms. One week within going Gluten Free Riley was improving, gaining weight and seemed more attentive. Going Gluten Free saved our daughters life. In early 2014, our daughter Maggie was diagnosed. She was less symptomatic, yet her levels were also very high on her initial blood test. We were shocked and saddened by the news but we were better prepared for her diagnosis. Our household had changed forever. Gluten Free is a lifestyle change but my wife and I were determined to do whatever was needed to keep our children healthy and thriving. Fast forward 2 years and our 4 year old and 6 year old are doing well. Riley is still overcoming obstacles from her early severe illness that occurred during such an important time in her developmental stages. Riley fights hard each day to "catch up" on her overall health and academic milestones. As protocol our youngest will be tested this summer once she turns 3 years old. We feel honored to be a part of Team Gluten Free. Teams are formed when individuals with a common interest, preference, liking, and attitude come and work together for a common goal. Teams play a very important role in organizations as well as our personal lives. Team Gluten Free saves lives and helps individuals and families tackle the most important game of their lives, the game of "health and well being".