Achalasia Awareness Organization
Organized by: ACHALASIA AWARENESS
Achalasia Awareness Organization is a worldwide grassroots Non-Profit movement to raise awareness for Achalasia. Achalasia is a rare, incurable and progressive autoimmune esophageal motility disease with only palliative treatment.
AAO's mission is to motivate patients, friends, family and the medical community to join in raising awareness via press, education, events and fundraisers in hopes of finding the causation and cure of Achalasia. Simply, most people and too many doctors don't know what it is.
AAO runs solely on volunteerism. What started as a small movement to get people within our community to get out there and raise awareness, has become far bigger than we imagined (we now have members in 46 countries). But as our membership and awareness campaigns grow, so must our organization. We wish to raise funds for the following: administrative help to bring us to the next level, funding for our social media and website, support for awareness events and to continue to promote awareness in the medical community. The larger we grow, the greater are our requests to disseminate information, need to organize events with our partners and emphasis on extending our reach in the medical community at large.
Achalasia sufferers have damage to the nerves of the esophagus which makes swallowing and the passing of food and liquid into the stomach extremely difficult. Achalasia is of unknown etiology and is most often misdiagnosed causing years of pain and struggle. There is a desperate need for research and awareness to bring this disease to the public and in turn to medical personnel so that those with Achalasia can procure timely diagnosis and treatment.
Any available funds, not directly needed to operate or used for awareness events, will go to a patient/s in need and/or donated for research.
We hope you will join us in bringing Achalasia into the collective conscience.
Thank you for supporting the Achalasia Awareness Organization. For more information please go to our website. http://achalasiaawareness.org We are also on facebook, twitter and Pinterest.